Written by a friend of mine that truly needs to be shared.
TLT: Teen Librarian's Toolbox: Teen Issues: Teen Pregnancy and Complications: The teen girl trudged through the mall like a zombie; obviously pregnant and with a strange backpack on her back with a tube going int...
Chaos is my life...and I love it!
I am a married sahm of three boys. Autism is definitely in our lives, affecting all three of my boys one way or another. This blog will be about our chaotic life; joys, sorrows, basically the wonderous roller coaster. William is my best friend and husband. My boys are Hunter, Preston and Conner. I am Jessica. The crazy woman that does what she can to help keep the family sane, although my own sanity has been questioned. hahaha
Wednesday, March 21, 2012
Saturday, February 18, 2012
Just how much more can he take?
Many changes going on. Not sure I'm ready for it all. Preston has regressions and a new aversion that is affecting his daily activities at school. When home, everything is so normal for us. Our normal. Then I get an email from the teacher and realize there really is a big difference. Then the worries about his future erupt.
Preston has many aversions as it is. To the point that on some days when his senses are overwhelmed, even the color of some one's eyes can send him into meltdown mode. This is our normal. It's all perfectly content in our home. Not the case when he's at school. He's experiencing quite a few setbacks on the behavior side of things. His reading and writing is improving wonderfully. He is so much closer to being on level with his peers that it's not even a consideration for him to repeat the grade. His speech is coming along very well. He's understanding concepts. He won't use a spoon anymore. His food options have reduced. He will eat something for me off a spoon if I feed him, but he is unable to handle using the spoon himself to feed himself. It's not that he can't hold the spoon anymore, but appears to be a sensory issue. He is unable to cope with the feelings of the spoon approaching his face. Unable to cope with the feeling of closing his lips around the spoon and the food slides off and onto his tongue, under his tongue, on his teeth. If the food is considered messy in any way to him (other than icing) then he will not eat it voluntarily. As an example, he loved the Yoplait Trix yogurt. Especially the cotton candy one. He loved the pastel pink and blue. Loved it. I loved it. He was eating a healthy item. I'm all about that. Then it all changed. "I can't eat that like that." So then he starts trying to lick the yogurt out of the container. Then he tries to squeeze the container to push the yogurt out. End result becomes such a mess. He does not like mess. Now yogurt is off his food choices. Pudding is off his food choices. If I feed him yogurt, then he will eat it. However, he is six years old. He is physically able. I can't allow myself to cater to that side and feed him. I have to be strong and work towards helping him get back to the point that he can cope with the sensations and eat with utensils on his own again.
Yet, there is a new aversion that is hindering him. To the point that eating his lunch at school is becoming difficult for him. Smell aversion is a big problem for us. He is extremely sensitive. To the point now that if any peer has a hamburger on their plate then he starts to gag by the smell and has to immediately move away. His teacher informed me that it's now getting to the point he is moving around a lot during lunch just trying to find a seat to be with his friends and also be able to eat his food. It's so bad now that he's eating alone. He is the child sitting at the corner table of the cafeteria all by himself. All because the smells are overwhelming him.Not all the kids in the cafeteria know my son. They are spinning their own back stories as to why he is sitting over there. With no friends. Clearly he has no friends. Clearly he is the weird guy that needs to be laughed at. Oh and then there's the problem of what happens when my son is being laughed at. Preston does not like being teased. Preston does not like being laughed at. Even when he does something so cute and I, as his parent, giggle because it is just too cute. It's something that every single parent experiences. Watching their child do or say something so out of character it's absolutely adorable with a touch of natural humor. For Preston, that is a detrimental action. His feelings are hurt. His heart hurts. His anger builds at a remarkable speed. He is thoroughly enraged. He screams. He throws. He kicks. He slaps. He cries. He drops his arms defeated. He is thoroughly crushed. He withdraws into himself. He pulls away from everyone around him. He wants no one. He likes no one. He loves no one. He retreats to a depth that no one can reach him at. All of this emotion happens in a span of seconds. Mere seconds for all of this to go through him and completely exhaust him. This much from a situation at home. Now imagine it happening for every person at his school that has ever laughed or teased him. Daily. Hourly.
He's six years old and I'm worried about middle school. I'm worried about high school. His education alone is not my worry. What worries me is every single other life aspect that goes along with growing up. The experiences in middle school. The experiences in high school. Will he be able to cope? Will he ever be able to find employment? I'm not worried about him being able to do a job. It's all the steps that have to be encountered in order to get that job. The interview. The social aspect. One must be able to communicate effectively. One must be able to cope with diversity. My son is unable to communicate effectively with his peers. My son is unable to cope with diversity. It has been this way for years.
Wednesday, February 15, 2012
Oh sweet coffee! How I love you so!
It has been a rather chaotic schedule this week, competely out of routine. Those with schedule/routine dependent children understand how challenging the change in routine alone can be. Then add the changes. Whew! I don't remember ever being this tired when my second son was an infant, never slept, and I was still working full time! I'm just quite simply...E X H A U S T E D. Hopefully my change in coffee will help decrease the erosion of my stomach lining, since the coffee is being ingested in very large quantities. I'm talking drinking enough coffee in 2.5 Days that is normally a 14 Day schedule. Since I demand flavored creamer, this is creating a serious problem on my belly and hips, and my stock supply. I'm now out and I haven't even finished my one 16oz Cup of coffee. It doesn't have the required amount of creamer. I'm tasting a lot more coffee than I do sweetness. I don't add sugar to my coffee. It is only sweetened by my creamer. Then, I like my coffee light. Strong, sweet and light. Right now, *tears*, it's just strong. Oh, but I am still drinking it. With every sip I say a little prayer for my flavored creamers than we will meet again. A major splurge that I do every other month or so is by going to Starbucks and I order...drum roll please...*giggles* yes, I have had many barristas question my sanity..."Yes, may I please have a quad venti Caramel Frappucino®. Yes, that is with 4 additional shots of espresso. Yes, blended please." I have yet been told of a more expensive coffee splurge. That special drink that I love so much (see, it's strong, sweet and light - not light on calories) costs me just under $9.00 with tax. At least this quarter. With our economy and inflation, the cost could go up next quarter. I don't care either. I will still buy my beautiful, wonderfully delicious beverage that is almost as good as reading a book by firelight on a cold winter's night. Know what would make that scene absolutely perfect? Drinking that coffee while reading a book by firelight on a cold winter's night.
It is rather interesting how I've come to this point in my life. As granny said to me once, "It's good to see dear that you are growing up. Would you like a cup of coffee with me?" You see, granny was a coffee drinker. She could drink it all day long, from dawn to dusk. Granny is my husband's grandmother. Everything about me simply amazed her and the fact that I was not a coffee drinker...well, that was a shock she just couldn't overcome. Then I had our second child. I was working full time and little man just would not sleep. My job was stressful and I had combined duties. Essentially 4 Positions - yes, I had 4 Job titles for one job. Looking back now, many years later, it was like I was working four jobs! That alone is exhausting and then add zero sleep to function. One morning, at the age of 30, enroute to take my son to daycare I chose to detour to the Starbucks around the corner. That morning was the start of my addiction. I started off slow, OK not slow but I wasn't drinking so many shots at first. As my stress grew, my coffee requests grew. I ordered more shots. I bought more coffee each day (one for breakfast, one at lunch, and there were days that I did a brunch run and an after lunch run). It has taken me a lot of time to work myself down from quite so much caffeine. My stomach lining was already ruined by my pregnancy and my coffee addiction did not help the situation. Guess what, I still refuse to stop drinking my coffee. I did agree to cut down and I have. I now use a much cheaper brand of coffee grounds and typically only drink one 16oz Coffee a day. That is quite an accomplishment considering where I was five years ago. I can also drink it hot instead of always "frozen". Oh sweet coffee! How I love you so!
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